Hey everyone. I was curious about others having a diagnosis of Fibromyalgia, along with SPD? I was diagnosed with Fibromyalgia 4yrs ago. Back in that year of FM diagnosis, is when my SPD became 100x worse as well. I basically went into a denial about both, for about 4yrs. This past May, I re-embraced the SPD after some serious suffering, re-evalutingand, and research, in addition to noting how much my son has the same issues.

Well, about a month ago, my oldest son, brought to my attention that a sign of Fibro, can be SPD. Suddenly I remembered I was diagnosed with Fibro, and came out of that denial.
Sad thing is that I also realized that my youngest son, has progressivly gotten worse, in the Fibromyalia symptoms, over the last 6 months, leading me to seek help for him, (which is in full swing -shockingly, having the backing of an older male pediatrician).

This is devastating to me - there is no cure, and my son is only 12.
Needless to say - I have been doing a lot of research on FM, and was shocked, seeing the amount of SPD associations now in the literature. It was not there 4 years ago - I never made a connection back then. I was just wondering if anyone else here, has fibromyalgia as well. I just received literature - to see in print about sensory overload - was a shock to me, like - did I miss something 4 yrs ago? It certainly makes sense. Yet some older folks on the Fibromyalgia forum (that have FM for many yrs) still are unaware of SPD in adults. No doubts about it for me, just amazed that I missed it back then, and why more connections have not been made in this realm. Just curious. stacey

(09-11-2012, 10:31 AM)shorrocksalot24 Wrote: Hey everyone. I was curious about others having a diagnosis of Fibromyalgia, along with SPD? I was diagnosed with Fibromyalgia 4yrs ago. Back in that year of FM diagnosis, is when my SPD became 100x worse as well. I basically went into a denial about both, for about 4yrs. This past May, I re-embraced the SPD after some serious suffering, re-evalutingand, and research, in addition to noting how much my son has the same issues.

Well, about a month ago, my oldest son, brought to my attention that a sign of Fibro, can be SPD. Suddenly I remembered I was diagnosed with Fibro, and came out of that denial.
Sad thing is that I also realized that my youngest son, has progressivly gotten worse, in the Fibromyalia symptoms, over the last 6 months, leading me to seek help for him, (which is in full swing -shockingly, having the backing of an older male pediatrician).

This is devastating to me - there is no cure, and my son is only 12.
Needless to say - I have been doing a lot of research on FM, and was shocked, seeing the amount of SPD associations now in the literature. It was not there 4 years ago - I never made a connection back then. I was just wondering if anyone else here, has fibromyalgia as well. I just received literature - to see in print about sensory overload - was a shock to me, like - did I miss something 4 yrs ago? It certainly makes sense. Yet some older folks on the Fibromyalgia forum (that have FM for many yrs) still are unaware of SPD in adults. No doubts about it for me, just amazed that I missed it back then, and why more connections have not been made in this realm. Just curious. stacey

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I'm new here so mind the posting.
I was diagnosed with fm 6monthes ago at that point I could not controll anything!!! Let alone the unbearable pain i was in and still get. I found 1 dr that had only seen a hand full of cases and heard of 100
When he could not get my heart rate and blood pressure down I run low and it was 150+bpm with symptoms of a pannic attack but i was not panicked he realized I have sensory issues. I aqurired this lovely ailment from a car crash and it had gotten to rock bottom in only two years. I have central sensatization syndromes which includes fm cfs ibs ot(orthostatic intolerance) as well as hypersensitive to light, sounds, vibration and heat. I don't know but what i have read about SPD when i was searching like all of us have, but it sounds very similar in ways.

THE ONLY thing that really helps is reset of medicated sleep cycle and knowing when is enough!!! With out those all hell breaks loose me and every one around me suffers it sucks

When I get over loaded it starts to feel like a flu shivers pains aches then if continue what I'm doing I start to get a headache behind my right eye and ear progressively gets worse till I'm going to tho up if I haven't had enough at that point the fm gets worse and i start to get swlowen glands up and down I think there is 16or26 I can't remember and i start to get foggy focusing bumping into things not being to recall or answer simple questions. Then the world starts spinning and loose control of atomic nervis system heart breathing temp hunger sleep ugh!!! All of them still there hiding waiting for me to slip up but not any where as bad as when I don't get my sleep with a 3year old this has been tough but my wife has been understanding ulthou resetting the sleep she gives up for me is worth the return of having a decent day with dad. And in the end that's all I hope for anyone including my son and wife;-)
Cheers for now chris

Chris, I relate to the feeling the physical parts for sure. The swollen glands, and other senses going wrong - I try to be more slow with what I am doing - and think about it - because I find that rushing - because of pain and sensory issues, just make me even worse. It is really hard to regulate myself though at times. I guess because I never feel the same any hour of the day. The gland swelling - is painful, and sometimes scary, but it goes away eventually. My throat and sinuses usually get hit too. I will feel feverish - but I run very low anyway. My heart - races on and off - and palpatates since I started to have symptoms of FM. I went through a bit of testing for that stuff, and other than the symptoms, they found nothing. Its great that sleeping well has a good impact on you, and even better that you have a wife that understands! I hope you feel better, and continue to do what is working for you! stacey

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I was diagnosed with fibromyalgia in 2007. I basically went to work and came home and slept. If I did any type of exercise (walking or riding a bike), I could only manage it for 30-60 minutes, then it would take me three to five days to recover from the fatigue and pain. I got very depressed and figured it would be that way the rest of my life. Then one day I was at a book store to pick a book to read on vacation, and while I was waiting for my husband, just standing around, I turned, and at my eye level, saw a book called, What Your Doctor May Not Tell You About Fibromyalgia: The Revolutionary Treatment That Can Reverse the Disease, by R. Paul St. Amand. I bought it and followed the advice in the book. In seven weeks I was completely better--no symptoms at all. It has now been five years, and I'm still well, except when I "cheat" on the diet for more than a day in a row.
Recently I discovered information about Salicylate Sensitivity, and many of the symptoms are common to SPD, so we're trying the diet for our daughter, who is 5 y.o. (called the Feingold diet). It has many of the same dietary recommendations as the fybro book, so I think there is a correlation between fybro and salicylate sensitivity, as well as contributing to SPD symptoms.
It is not for the faint of heart to do either of these diets, but I can tell you first hand that if you try it, you will feel remarkably better.