(12-13-2011, 01:38 AM)bbgrl Wrote: I think this has been the most befuddling thing for me as a parent. The complexities and scope of a neorological disorder are so unlike other diseases and ailments in that you can't expect that symptom + treatment = problem solved. I think about this constantly - how can we solve this, what haven't we tried, what have we tried that was maybe to close to other things we tried and maybe wasn't a true result that we should try again. Still very little has changed despite our efforts and I can't help but wonder, will I be able to out last this? We were assured that it was colic and wouldn't last past 4 months, then it was reflux which shouldn't go past 7-9, then it was "it reallly get's better when they walk," and now I think comming to terms with reality in meeting with doctors who understand this disorder, it may get better but it may take a while and thinking about that just make me tired and I'm already tired.

This probably sounds silly, but right now my greatest hope is that someday Julia and I will be able to snuggle to sleep together, lying still in bed. If that doesn't happen I hope some genius will invent a swing that holds both a sleeping child and a sleeping parent.

Sorry this has turned into a bit a diary entry... I'd still love anymore suggestions.

I think I spent half my son's first year in this old rocking lounge chair that I have. I could put my feet on the ottoman, balance him on my chest and nap while keeping up a gentle bouncing motion. He has always been death on swings - he lasted less than 15 seconds in the infant swing before he began to SCREAM in abject terror. He was only a couple months old then, and this wasn't crying, it was outright terror. So swinging didn't do it for him, but a gentle bounce worked for both of us. The first time he voluntarily got on a swing, he was 11 years old.

When I read your post, I thought of a chair that IKEA sells. I don't know there might be an IKEA store near you, but if so, see if you can "test sit" for a while in http://www.ikea.com/us/en/catalog/catego...ies/07472/ (Poang chair or rocker). Their flexible frame allows for just a bit of motion, but it isn't a swinging motion. I found things like that were helpful.

BTW my son's OT tells me that an aversion to swinging is usually the first sign of vestibular/balance problems - if I had only known it then!