Hi, I've been wanting to come here for a wile but everytime I would come read on the forum, I would become discourage because the area that I live in not a lot of people know about SPD or bieleve that it dosent exist. I've never had a official diagnosis. I've been expericing sensory problem all my life and finaly at the age of 31 I found it on the internet and it seems like everyting fell into place and could not find anything ells that best describe me with my hypersensitivity to tactile and auditory.

My family doctor has been very supportive if my finding and I'm curently seeing a wonderfull O.T. who is also very supporting and I don't know what I would have done without her. She's doing the best that she can to help me. She give me exercesice to do and my balance has improve so much and I feel more stable and steady on my feet. She had referd me at a place not to fare from where I live in hope having a proper diagnosis and that maby a someone that would have more knowlege on how to properly treate me but it didn't go that way. Instead I saw someone who don't bielive in SPD and said that anxiety was causing my sensory problems and wanted me to go see a psychiatrist and take medication without doing any test to rule out any other medical conditon. I don't want to take medication because of past bad reaction to medication.

I told my doctor that I wanted to see a neurologist or somebody ells that would knowledge about SPD and would be willing to do more testing than wanting to give me medication. Would it be a good idea to see a neurologist? I don't know what els to do. went I was born doctors said I was microcephalic but I don't really have full proof.

In many areas, doctors don't believe in SPD and it's so frustrating. My sons' pediatrician initially told me that SPD is not a stand-alone diagnosis, it is a symptom of autism. But luckily, he has changed his mind over the last 3, almost 4 years--I hope I played a role in changing his mind!

It also seems to be a greater challenge to diagnose and treat adults with SPD. You can try to find an OT who has been educated about SPD--sounds like that's not an option. Otherwise you could try either behavioral psychologist or a neurologist. I don't have any experience with neurologists, but I believe I've read about others who have gone to appts. My older son and I go to a behavioral psychologists office. He does a weekly social skills group with 3 other kids who have a combination of SPD, ADD, OCD, and autism. My son didn't fit all the criteria for autism, but he definitely struggles socially. I go individually to one of the doctors.

I find that I do best when I go to an exercise class at least once a week. It's my version of OT. It helps both my depression and my SPD. Medication won't help SPD. I've even read recently that ADD can be treated with OT rather than medication, as well.

Check in and let us know if you were able to get help!

(11-09-2011, 01:43 AM)LynnNBoys Wrote: In many areas, doctors don't believe in SPD and it's so frustrating. My sons' pediatrician initially told me that SPD is not a stand-alone diagnosis, it is a symptom of autism. But luckily, he has changed his mind over the last 3, almost 4 years--I hope I played a role in changing his mind!

It also seems to be a greater challenge to diagnose and treat adults with SPD. You can try to find an OT who has been educated about SPD--sounds like that's not an option. Otherwise you could try either behavioral psychologist or a neurologist. I don't have any experience with neurologists, but I believe I've read about others who have gone to appts. My older son and I go to a behavioral psychologists office. He does a weekly social skills group with 3 other kids who have a combination of SPD, ADD, OCD, and autism. My son didn't fit all the criteria for autism, but he definitely struggles socially. I go individually to one of the doctors.

I find that I do best when I go to an exercise class at least once a week. It's my version of OT. It helps both my depression and my SPD. Medication won't help SPD. I've even read recently that ADD can be treated with OT rather than medication, as well.

Check in and let us know if you were able to get help!

Hi and tanks for your reply. I'm curently seeing a extra mural OT and she has help me more than anyone could imagine. The exercises she give is helping a lot. In the past a I had been giving exercises by a physio to help with my postur and balance but after over a year I had absolutely no improvement. Also now I've learn to to deep breathing to calm myself instead of freaking out everythime my hands of feet were sticky or durty or touching someting to hot or cold and now I've starting to applied the deep breating for other situation to.

But she can't teach me the brushing and joint compression and I know were I could find a OT more specialized in SPD but can't afford it so that's why I went with extra mural since it free.

Went to see my family doctor yesterday and he had the report from the physiatrist and didn't agree with is report that OT wasn't going to help with the SPD and his recomendation was for me to see a spyciatrist, so now the doctor,s sending me to a neurologist so I can get another form of oppinion.