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New here
Author Message
TraceyJ Offline
Newbie

Posts: 2
Joined: Nov 2012
#1
New here

I am so glad I found this board. I am the mom of a wonderful 7 year old boy.

He had Kawasaki disease when he was 2. I think this may have exacerbated his issues. I suspect he has had issues since preschool and he has always seemed to be a sensory seeker. He would run into other kids, always want to wrestle, seem impervious to pain, and much more. Overall from what I have been reading, he seems like he has proprioception, auditory, and vestibular issues. For a long time, we thought it may be ADHD. We have been going to a pediatrician who treats our son with biomedical approach-diet and also supplements. But despite this, I as the mom can tell there are other issues.

He did fantastic in 1st grade but also had a wonderful teacher. He would sit in the front, be a helper, etc. At the end of the school year he was reading well above grade level and off the charts in math. This year he is struggling a bit more in reading, reading comprehension, and overall the noise in the class is distracting him a lot. He never complained of this in the 1st grade. My husband has been able to sit in on 2 classes and he has observed the teacher has little control over the kids who are making noise and she is easily distracted when the kids fidget, make noise, etc. herself. My son wears headphones when he is doing quiet work in the class. He stills continues to have trouble with calling out answers in class, fidgeting, auditory issues, etc.

I talked to his director because I felt at this point the school can point me to some resources. I was not getting much response. So I wrote to my school district and actually a psychologist called me within a few days! She is assigned to the school and will send me assessment forms. Also she told me the director is in the process of hiring a special ed teacher. This is a charter school. Is it unusual for schools to not have a special ed teacher at all?

Also on our own we find a private OT who did an assessment and will send us reports soon. She works in the schools and she has been an OT for over 30 years and is certified in SIPT. I was very happy to find her as some private centers had a wait list of 2-6 months.

So currently I am waiting on the OT report, going to schedule an SST meeting for next week, and then hopefully the district will do their own assessment soon. I need help understanding what the SST process will be like. Also I really feel like the teacher needs some help as she cannot handle the class and seems burnt out-not related to my son. I offered to help be the room parent as I want to support her. But her personality overall is very critical. She wants the kids to just focus and sit still but that does not mean they are learning. It is a small school so only one 2nd grade. My husband and I feel that if things don't change we want to go to a local private school that we know has resources for special needs and a lot of experience. But it will be a big financial burden.

I am hopeful about the whole process though and feel that with the district psychologist and new special ed teacher, we can make some progress.

Some about my son-he is very athletic and plays all sports, super social and lots of friends, he loves to draw, build Legos. He is very creative and loves dancing too. He goes to a music school so he loves singing and music. I am proud of him and don't want his special needs to be interpreted as bad behavior. He has told me that he tries and it does not work and I feel so heartbroken.

What do I like to do? I love reading, following medical and social research about ASD, kickboxing and exercising
Find Reply


Messages In This Thread
New here - by TraceyJ - 11-08-2012, 03:51 PM
RE: New here - by heather40 - 11-09-2012, 08:03 AM
RE: New here - by TraceyJ - 11-09-2012, 01:38 PM

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