(09-11-2012, 10:31 AM)shorrocksalot24 Wrote: Hey everyone. I was curious about others having a diagnosis of Fibromyalgia, along with SPD? I was diagnosed with Fibromyalgia 4yrs ago. Back in that year of FM diagnosis, is when my SPD became 100x worse as well. I basically went into a denial about both, for about 4yrs. This past May, I re-embraced the SPD after some serious suffering, re-evalutingand, and research, in addition to noting how much my son has the same issues.

Well, about a month ago, my oldest son, brought to my attention that a sign of Fibro, can be SPD. Suddenly I remembered I was diagnosed with Fibro, and came out of that denial.
Sad thing is that I also realized that my youngest son, has progressivly gotten worse, in the Fibromyalia symptoms, over the last 6 months, leading me to seek help for him, (which is in full swing -shockingly, having the backing of an older male pediatrician).

This is devastating to me - there is no cure, and my son is only 12.
Needless to say - I have been doing a lot of research on FM, and was shocked, seeing the amount of SPD associations now in the literature. It was not there 4 years ago - I never made a connection back then. I was just wondering if anyone else here, has fibromyalgia as well. I just received literature - to see in print about sensory overload - was a shock to me, like - did I miss something 4 yrs ago? It certainly makes sense. Yet some older folks on the Fibromyalgia forum (that have FM for many yrs) still are unaware of SPD in adults. No doubts about it for me, just amazed that I missed it back then, and why more connections have not been made in this realm. Just curious. stacey

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I'm new here so mind the posting.
I was diagnosed with fm 6monthes ago at that point I could not controll anything!!! Let alone the unbearable pain i was in and still get. I found 1 dr that had only seen a hand full of cases and heard of 100
When he could not get my heart rate and blood pressure down I run low and it was 150+bpm with symptoms of a pannic attack but i was not panicked he realized I have sensory issues. I aqurired this lovely ailment from a car crash and it had gotten to rock bottom in only two years. I have central sensatization syndromes which includes fm cfs ibs ot(orthostatic intolerance) as well as hypersensitive to light, sounds, vibration and heat. I don't know but what i have read about SPD when i was searching like all of us have, but it sounds very similar in ways.

THE ONLY thing that really helps is reset of medicated sleep cycle and knowing when is enough!!! With out those all hell breaks loose me and every one around me suffers it sucks

When I get over loaded it starts to feel like a flu shivers pains aches then if continue what I'm doing I start to get a headache behind my right eye and ear progressively gets worse till I'm going to tho up if I haven't had enough at that point the fm gets worse and i start to get swlowen glands up and down I think there is 16or26 I can't remember and i start to get foggy focusing bumping into things not being to recall or answer simple questions. Then the world starts spinning and loose control of atomic nervis system heart breathing temp hunger sleep ugh!!! All of them still there hiding waiting for me to slip up but not any where as bad as when I don't get my sleep with a 3year old this has been tough but my wife has been understanding ulthou resetting the sleep she gives up for me is worth the return of having a decent day with dad. And in the end that's all I hope for anyone including my son and wife;-)
Cheers for now chris