(07-16-2012, 07:20 PM)Odemus Wrote: Your DD sounds like a plder version of mine.
My Daughter Lilly is 2.5, she will be 3 in Jan.
She will eat anything no food issues there,
she LOVES water
very huggy and wants constant movement, shes climbing over my legs and jumping around right now,
use to have to be restrained to sleep but now she just pulls a pillow over her head and passes out for hours.
very little speach, but she is making progress and she know quite a few ASL signs,
Her movements are very jerky she still dosnt truly run, but she has PT as her whole body movements are not connected very well she toe walks alot.
dosnt follow 1 step directions yet, but can put any puzzle together you can find and has been able to do that for over a year.
just entered a stage where she mimics everything her bigger brother does.
and just recently went from a if your not mom/dad i wont give you time of day To, ill hug a perfect stranger and try to crawl in their laps..
Loves to watch Signing times, Dora, and Diego
does many repetive actions
Turns into The HULK if you try to take her from what she wants to do.
slams her head into things HARD when shes upset.
takes her shoes/socks off and will walk barefoot on ice for 20minutes if we let her..
loves to be brushed, HATES her hair messed with.
sticky stuff makes her zone out, use to take sticks and jab them into herself and run it up and down her arms and legs.. thankfully shes left this behind since her PT added OT to her week.

there is SO much more about her that is super seeking.

her brother is a Avoider, and was REALLY bad for the 1st 3 years of his life, as a infant she sat in on his ILP since birth, they were born 21mth appart, and we were JUST learning about his issues when she was born.. everyone thought i was crazy becuse i KNEW something wasnt right with him. everyone even DRs said oh he just needs time.. hes fine, your crazy.
so he was JUST RXed when lilly was 2-3mths old. I thought she was going to be our "Normal" one, well here we are near 3 years later and shes WAY worst then Charlie EVER was, and has way less language or direction following then charlie did at this age...
her last Eval put her in the 11mth old for most of her skills... a few things like fine motor are above avarage, but she's always been great at Fine stuff from day one.

sorry so long ..LOL
I just found this place, its been hard, even hubby STILL thinks there is nothing REALLY wrong, and all this is my way of getting more attention

Don't be sorry for letting it all out. I think you're right about Lilly being a younger version of my daughter, Ellie. I had forgotten about the hair thing--screams, pounds her fists on the counter. I should buy stock in No More Tangles. The OT suggested I have her hold a weighted stuffed animal while I do her hair. I tried it tonight, and it worked! No hair brushing drama.
She had her first OT appt today, and I received (had to ask for) a copy of the evaluation report. They diagnosed her as having dyspraxia, which she has a few symptoms of, but not as many as modulation disorder. I imagine insurance is more likely to cover more OT sessions of they say it's dyspraxia because sensory modulation disorder is not an approved diagnosis. She's approved for 12 sessions.
They put her on a spinning board, which made her really uncomfortable and nauseas. She recovered after 3-4 minutes and went right back to crashing, jumping in the ball pit, doing the zip line and several other activities. I never heard her say so many times, "I'm too tired to do that." On the way home, since we hadn't eaten dinner, I stopped and bought her favorite-chicken nuggets. She wouldn't take even one bite. I knew she was probably still not feeling well from the spinning, but I had to stop at the grocery store due to the "fridge incident" mentioned above. About 20 minutes into shopping, she vomited all over the place. I had to finish the shopping because I have no food in the house. I was just praying, please don't let her throw up again. We made it home with no other issues.
They gave me so many new activities to do at home with her my head was spinning. I think I need to email or call the OT and tell her to please give me instructions in writing. I found out I was doing the Wilbarger Brushing Protocol half incorrectly--brushing wrong, compressions correctly--because she showed us once for about 20 seconds. Our OT is very energetic and knowledgeable, but she moves at the speed of light. After working all day and a 50 minute drive to get to OT, my focus was probably worse than Ellie's.
Ellie has been getting speech therapy for about three years. There has been slow and steady progress, but she's still very difficult to understand, especially by people who don't know her. The bite toys/necklaces have been helpful. She's definitely moving her tongue around more and saying her letters more correctly since we've given her biting exercises. Lilly is probably to young for gum, but the biting sticks may help her with speech development.
Have you read Sensational Kids?

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(07-16-2012, 05:34 PM)Jaffa Wrote: All the symptoms you have written with exception of the sugar is my 5 yr old. To add to this he has a fixation for pouring liquids, ie oil, toothpaste, liquid hand soap etc, onto taps, nail brushes, plugs, knobs on cooker. I have hidden the toothpaste cos he smears the bath with it.
I love him to bits, he is fun, lovable, very friendly (too friendly with strangers) and full of energy and happiness.
Every cloud has a silver living.

Yes, indeed. The non-stop, 24 hr. supervision really gets me down sometimes. I tend to avoid getting sitters because it's so much work to bring them up to speed. I think I've gotten a sitter twice in the last year. The silver lining is what keeps me going!