shorrocksalot24
Regular
Posts: 57
Joined: May 2012
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I am really unsure about even trying more than doing what comes natural. My son has been to Childrens Hospital of Philadelphia neurologist - a few years ago - and the appointment was rough. Reason being - the neurologists are too busy. The one we had - went off of the papers I filled out - and met with us for all of 15 minutes. We had went because of what I thought was identical to PANDAS - which is still not accepted as a diagnosis. This was due to him getting so sick - and having very specific symptoms that matched this diagnosis. Since she did not believe in it (which she told me) she diagnosed him with tourettes, and migranes.
With all of my misdiagnosis - I fear my son going the same route of bad doctoring. Being proactive, and even knowledgeable - doesn't necessarily get you good doctoring - or help. I am having trouble finding anyone (let alone OTs - which from what I see so far would be most beneficial) that deals with SPD. It also seems like ADHD, Tourettes, and SPD have so many overlapping symptoms - which as far as I am concerned is fine. I want to help myself, and my son - and just make sure that we can cope better. Since I am newly accepting of SPD since May - I feel justified in how I have handled my situation - and my sons.
As far as my husband - well - I would like to think of him starting to understand it - but he is very quick to revert back to the normal way he thinks and reacts.
We were all watching a movie together - and I grabbed a bag of pop rocks, which amuse me to no end. Imagine how much more amused I was, when I drove my DH nuts, able to make them echo and pop like I had a mega phone on my mouth. I stopped though, because I could see how crazy it made him. I told him that, that feeling I saw take over his face - is what I go through almost constantly, in stores, at home, by myself. It registered something at that moment for him. I took the opportunity to give him the book "too loud, too bright, too fast, too tight" again - that I marked up about 4 years ago. I plead with him to at least look at it for his sons sake. And he did. He is currently in agreement to get our sons room in order, so that we can make it his "get away" - to calm down - in peace, and private. Its a start......
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07-07-2012, 03:57 PM |
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