Raven
Regular
Posts: 39
Joined: Jan 2012
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The worst thing about SPD
Let me explain. Yesterday I ended up in the Emergency Room having horrible pelvic pain. Although the pain came in waves, at the top of the wave, the pain was about a 7 out of 10. The attending physician thought I was passing a kidney stone; I wasn't. It was a kidney infection. Anyway, from this experience, I just want to share why I really hate having SPD.
Before going to the ER, I couldn't decide if the pain was bad enough to constitute an emergency. I over react to pain and even when I stub my toe, the pain is excruciating. In addition, I have a really difficult time gauging my sensations. For example, at the ER they gave me an intravenous antibiotic. Now, I'm allergic to a whole lot of things, medicine is one of them. So, the antibiotic was making me feel weird. Strange taste in my mouth, funny skin feelings. And on top of it, I was having anxiety from the whole experience. So the nurse asks me if I'm having an allergic reaction and I don't know! I can't tell the allergic reaction sensations from any other sensations. The nurse looked at me as if I was nuts.
This is just an example. I've had this problem my whole life. Is the pain bad enough to warrent special attention? How bad is bad, when it hurts really badly. It that weird feeling in my chest something to worry about or not? And then, sometimes, I just ignore the weird feeling and the doctors lecture me for not coming in when something changes. How do you explain that everything changes, I always feel weird, and I can't tell a serious sensation from an everyday weird sensation. In addition, I'm always in some type of pain from the SPD. Which is a problem pain and which is just my sensory system having a fit? What is a sensation that needs attention and which is not? It really drives me nuts.
Sorry for the rant, but few in my town really understands what I'm going through and I figured some of you would have the exact same problem. Thanks for listening (or rather, reading)
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04-02-2012, 10:55 PM |
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