owensmum
Regular
Posts: 27
Joined: Mar 2012
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RE: mum of "the worst child in the school"
Hi - yea you're right he has no clue really whats happening to him and cant express any kind of need - CCD team are implementing pictoral communication in school for him. But in any case once hes flipped they ring me to fetch him home as he cant calm himself down and has to be isolated untill he burns out.
OT is going in again on tuesday to try and explain again what SPD is to school but I think quite frankly they dont care anymore. I am leaving him there untill we get his statement through then I'll move him again, although I have made it prefectly clear I want him out of mainstream and I will fight them untill that happens
Think the thing with SPD is how much it could be mistaken for so many other things. We started off life being told it was autism - he then got a diagnois of dyspraxia with hypermobility and hypotonia - went back to CAMHS who still say a spectrum diagnosis would be beneficial to him and are looking at Newsons but in the meantime hes been seen by OT who picked up the SPD. hes been tested for epilepsy as his "stims" are so pronounced we thought he was fitting but they confirmed its definitely an overload and not epilepsy.
At the moment I think my most positive thought it that he will be spending 6 weeks at the PRU as hes at risk of permanent exclusion and at leat they have secialist teachers there who will be able to tell his school he isnt doing it on purpose and prove what i keep telling people that disciplline and rewards dont work with him - he couldnt care less - and that fits with Newsons
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03-03-2012, 05:55 AM |
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