Beebs2424
Regular
Posts: 18
Joined: Jul 2011
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RE: My son is a mystery to his OT
How frustrating this must be for you! I have a very young son who has SPD (under 1 year old) that we caught because of a regression. He is in therapy for feeding and OT right now and we are unsure if it is an ASD or not. We are doing the GFCF diet which has helped him with eye contact tremendously. He is so young that we cannot get a diagnosis of WHAT exactly it is at this stage. It would help to get a diagnosis so that services would be covered.
My son, I can tell already, is VERY bright, but very socially inept. He tried to figure everything out -- how things fit together, opening and closing things, he can even plug things into outlets at 10 years old because he has seen it plugged in there before... he is amazing, but has such issues with SPD. He is so sensitive to light, sound, cannot self soothe, etc. It is so sad. He does not like to be held close or cuddled at all and is a major seeker at home.
When he is in public places (though again he is very young), he does not babble or make noises -- he clutches to us... but get him home or in the car with MOm and Dad and he is mamamamama, um, dadada, and making all kinds of sounds. He is very fearful of the unknown as well and we will see what happens on his journey.
We are taking our son to a DAN! doctor who works with all kinds of children on and off the spectrum with neurological problems. He has been our biggest saving grace thus far. He too has a child with SPD and Autism and speaks the same language as us... instead of looking at us with a big blank stare like our other pediatrician did... saying that he was FINE. Ughhh. This doctor told us that if you were to take your son/daughter to 10 diff developmental doctors, you would probably come out with 11 or 12 diagnoses... ultimately, you need to trust your gut, share you story with them and find the one that fitsbest. And don't give up till you do so that you can get the help you need and deserve.
Good luck to yoU!!! All the best!
Ashlee
Mom of Tyler
Step Mom of Ben, Maddie and Jenna
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09-05-2011, 12:18 PM |
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