AJINE
Newbie
Posts: 4
Joined: Aug 2011
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Hi There,
Thank you for the greeting! I look forward to learning more about SPD. Just reading some of the posts today, I was in tears as I realized that I need not feel so isolated. Others are facing these daily battles too- having to explain to people, trying to maintain peer realtionships for "I" when the time together can be unpredictable, extended family that doesn't understand, going to the grocery store being an impossible task- but being so bone dead tired at the end of the day that shopping at 10pm is more like a sleepwalking exercise.... I've been so tired.
We have three kiddos- two boys 5 and 3, and a 13mo old girl. It's been a busy five years :-). Our 5yo is the little guy with SPD. It's been such a rough road the last few years. Right now I'm battling the insurance co who will deny coverage after "I" turns 6. As it is, they only pay 70%. We just found out how to help him after actively seeking help over the last 15 months, and now we only have a few months to "figure it out". Our state does not mandate that insurance companies pay for therapy classified as Neurodevelopmental Therapy, after the age of 6- so the legislation really needs to be changed. Do you know of advocacy groups that are working on that type of thing? In the meantime, we're paying privately for weekly therapy. It isn't right. It feels like another weight laid on our shoulders having a deadline.
We'll hope for the best, but sometimes I feel like Atlas-
Thanks for extending a "hello". Would you like to share a bit about yourself and your little guys?
Sleep well-
AJINE
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08-18-2011, 01:15 AM |
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