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Young adult with SPD desperately needing help
Author Message
Kwstar Offline
Newbie

Posts: 2
Joined: May 2021
#6
RE: Young adult with SPD desperately needing help

Hello,
I am new here but my story is very similar to your daughters and too as a teen tried to kill myself. I however primarly self harmed. It wasn't until I was 16 that I was diagnosed with being on the spectrum, (as a kid it was either you were nonverbal for you didn't have Autism at all, there was no spectrum, I am now 28) and even though I had treatment for my sensory issues since birth the combo of them being super severe and having the added social issues was too much. As a kid I worked with the lady who founded the Star institute in Colorado, Lucy. She is retried now but she built the team and headed the way to much of the research done about sensory issues. I highly highly recommend seeking help from their team as they are ahead of the game in research and ways to help kids and adults with all levels of sensory issues. They do free consultations so I think this would be one of the best places to start. I didn't know that my self harm (I got treatment and no longer self harm!) was very directly related to my sensory issues as a teen. It was the way I dealt with every unpleasant, overwhelming stimuli. Here is the link to the Star Institute. I don't know where you live but they are very flexible and can also recommend help locally if you are not in CO. https://www.google.com/search?client=saf...8&oe=UTF-8
I won't lie to you, and say I am not still massively affected by my sensory issues as an adult (actually going to be restarting therapy with their team at Star) but I will say I am no longer a danger to myself and having someone out their that understands and is researching about how this stuff works really is a huge burden taken off my shoulders. They know its not our faults, its a fight or flight response to things we can not control. Their are also meds in addition to therapy that can really help and I am trying a new one now (Nodolal) Been on Prozac for it since I was 4 but that was before new research about Beta blockers helping came out. I wish you both the best, feel free to message me privately if you would like to ask any questions or need someone to chat with!
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RE: Young adult with SPD desperately needing help - by Kwstar - 05-24-2021, 02:40 AM

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