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+--- Thread: New to SPD (/thread-411.html)
New to SPD - tbclarsen - 08-18-2011
Hi,
My six year old son was just diagnosed with SPD yesterday. I am so happy to finally have a name for all the "symptoms" that he has been having.
My son was diagnosed with PDD autism at the age of 2 1/2. He in the last year had made great progress, and we had him tested again. He did not test into the Autism Spectrum, so we felt he was misdiagnosed.
Now that we now what SPD is, it explains all the the things that we have seen him go through in the past years.
I am so excited to have found this forum, and have support and get ideas from others.
My next step is to figure out how to get accommodation him put into his IEP at school. Any suggestions?
RE: New to SPD - LaneSensorina - 08-19-2011
Welcome! I have no information to offer but I can tell you I know how it feels to finally know what the problem is. It's a huge releif. I didn't find out until I was 50. Your son is very lucky to have helpful, thoughtful adults looking out for him. There are lots of wise moms of SPDers on this forum. I am sure you will get answers to your questions soon.
Sincerely,
Lane
RE: New to SPD - AngelaVA - 08-19-2011
Welcome!!! Are you getting OT? Can they do a writeup in which they include needed educational accommodations. Then I think you would request a meeting with the IEP coordinator. Since IEP processes take awhile it might be good to go ahead a share that information with his teacher as well. She may have some ideas about how to implement some of the accommodations in the classroom right away.
RE: New to SPD - Llavilette - 08-20-2011
Welcome!!! I know the feeling of relief to finally have something that really fits. I honestly don't know why this disorder is so hidden. and does not get the same attention or respect as other things. I wish I could help with the iep suggestions I am starting that journey myself. Best of luck to you and your son.
RE: New to SPD - LynnNBoys - 08-23-2011
Hi and welcome! I shared some of my IEP/504/PPT experiences in the General section under the School Discussions. Hopefully some of that is useful.
I agree with Angela. Have the OT write out suggestions and recommend things the school can do. I also bought a couple of books for his teacher to use. One of them was: http://www.amazon.com/Answers-Questions-Teachers-Sensory-Integration/dp/1932565469/ref=sr_1_1?ie=UTF8&qid=1314070544&sr=8-1
My older son was also six when he was diagnosed.
RE: New to SPD - Beebs2424 - 08-23-2011
Welcome!!! I am new to the world of SPD diagnosis as well for my son. He is only 10 months old, so I have no IEP suggestions for you either, but I do understand the frustration of not knowing. We do not have any diagnosis besides this for our son either... we are not sure if he may be on the spectrum or not. Time will tell.
Either way, welcome. Glad you have found us!!
RE: New to SPD - tbclarsen - 08-23-2011
Update:
Just this week I have had a new transition meeting for my son to transfer to a different school. It is amazing how some changes make all the difference. The OT at the new school have had lots of experience with SPD and have made many great suggestions. They have even gotten him a chair wedge and made him a quiet area in his class where he can go if he needs.
It is a relief to know that there are some professionals who are willing to work with my family. Hopefully these great things will continue.
RE: New to SPD - LynnNBoys - 08-23-2011
Hooray! That's great to hear! It makes things so much easier when the school works with you.
My son tried the wedge but it didn't really help him. But they did do a seat with a back for him (like you might buy for going to a stadium with bench seating, to give you back support). He has low muscle tone and his school does a lot of activites on the floor--in the classroom (morning meeting on the rug) and weekly assemblies in the gym. So without any back support he would be lying down on the floor after 5-10 minutes.
RE: New to SPD - AngelaVA - 08-24-2011
Yay!!! I'm so happy to hear there are schools become more aware of these issues. I used to teach first grade and looking back I can think of at least 3 kids I had in my class over the years that had SPD and no one could figure out what was going on with them.